werd

people have been asking for an update but im behind as usual :)  we met with dr ben in the midst of the blizzard thursday.  i was waiting for him to bring up the issue from reading her reports.  he wanted to know where we were at with everything and we told him we never did anything after seeing the neuro. i explained my thoughts and reasons for waiting on testing and he said he was comfortable with waiting and seeing how she progresses and we will revisit the issue every time we see him.  he also said he wouldn't have noticed the low tone if he hadn't known so that was positive for me to hear.  but he did say that MD isnt diagnosed until later and then i for some reason got really worried again and was questioning myself.  he explained things well and i held back the tears.  he thinks it wont change our treatment plan right at this moment.  and he explained hydrocephalus and how her head is measuring big but the jumps up in percentile were not huge and not a concern at all.  thats all we wanted to know people!!  why couldnt someone have explained that to us before when we were asking??  he also said he would refer us to STL if we decide to go back for testing.  so overall it was a good appt.  he asked if she could say 6 words and i said probably 20 :)  and honestly in the past few days she has just started repeating everything!!  you can tell her to say any word and she usually will say it pretty close.  aaaaaand on friday she took 3 steps 2 different times!!  she took her time and did it slowly-not like falling walking into something.  everyone says watch out!  but tyson and i both said, we know our little lady and she still probably wont do that again for a few weeks!  shes not daring.  she likes to perfect her skills before using them often.  i said she will be walking by 16 months so that gives her a month to work on it!

ive been working like crazy lately!  getting so many patients.  i actually have a lot of kids im seeing right now which is neat and a few adults.  im loving so many new challenging things to research and refresh my memory on how to do different techniques.  i am loving my job!!!  the best decision i ever made (besides marrying tyson and having a baby) is taking this job!!  life is good! :)

update

its been a rough couple weeks and ive wrote a few blogs then deleted them before i could hit 'publish'.  we feel like hazel is doing really well-shes balancing so well and will even walk if you are just holding onto one of her hands.  and she has stood up in the middle of a room without holding onto anything a few times :)  but when we went to the dr for an ear check up she was really pushy about going through with the neurologist's testing recommendations.  so then i start questioning myself and reading a lot of muscular dystrophy and how most kids arent diagnosed until age 4 b/c they are so mild and then i worry myself that my little baby has a degenerative disease that i am too scared get a for sure diagnosis.  ei came and kind of left it up to us if we wanted her to have services b/c she was borderline for gross motor skills (she was above expectations on everything else :) ).  we decided against it b/c with our income we have to pay a pretty good amount for their services and talked like they might just check in once a month.  also, all 3 professionals were AT LEAST a 1/2 hr late and im just not cool with all their last minute cancelling/rescheduling/excuses.  i love our pt in springfield and its worth the drive to me to get quality care.

back to the testing.  ive tried to not talk to tyson too much about my indecisions.  hes getting frustrated with it all b/c he knows nothing is wrong with our little perfect baby!  i feel like that too but i just dont want to be wrong and regret putting off the testing.  so we switched drs to our favorite dr ben!  im excited to meet with him next week to get his opinion.  tyson said if he suggests we go forward he is willing to start with at least the blood and urine tests.  im thinking either way he will put our mind at ease b/c he is good about explaining things which we feel like hasnt happened thus far.

so today i feel good about her progress.  next week i may be confused again.  all i know is that my little lady is progressing so nicely and im sure she will be walking before the 18 month mark (i think it will be 16 months).  oh and her pt thinks she might not have to have shoe inserts!!  we have been doing toe stretches b/c shes curls her toes under so much due to poor balance and trying to grip the floor that they can become tight and permanently curled.  we are still working on core weak muscles too but we feel like shes doing amazing.

i hope everyone had a wonderful valentine's day!  we sure did :)  xoxo