its been a rough couple weeks and ive wrote a few blogs then deleted them before i could hit 'publish'. we feel like hazel is doing really well-shes balancing so well and will even walk if you are just holding onto one of her hands. and she has stood up in the middle of a room without holding onto anything a few times :) but when we went to the dr for an ear check up she was really pushy about going through with the neurologist's testing recommendations. so then i start questioning myself and reading a lot of muscular dystrophy and how most kids arent diagnosed until age 4 b/c they are so mild and then i worry myself that my little baby has a degenerative disease that i am too scared get a for sure diagnosis. ei came and kind of left it up to us if we wanted her to have services b/c she was borderline for gross motor skills (she was above expectations on everything else :) ). we decided against it b/c with our income we have to pay a pretty good amount for their services and talked like they might just check in once a month. also, all 3 professionals were AT LEAST a 1/2 hr late and im just not cool with all their last minute cancelling/rescheduling/excuses. i love our pt in springfield and its worth the drive to me to get quality care.
back to the testing. ive tried to not talk to tyson too much about my indecisions. hes getting frustrated with it all b/c he knows nothing is wrong with our little perfect baby! i feel like that too but i just dont want to be wrong and regret putting off the testing. so we switched drs to our favorite dr ben! im excited to meet with him next week to get his opinion. tyson said if he suggests we go forward he is willing to start with at least the blood and urine tests. im thinking either way he will put our mind at ease b/c he is good about explaining things which we feel like hasnt happened thus far.
so today i feel good about her progress. next week i may be confused again. all i know is that my little lady is progressing so nicely and im sure she will be walking before the 18 month mark (i think it will be 16 months). oh and her pt thinks she might not have to have shoe inserts!! we have been doing toe stretches b/c shes curls her toes under so much due to poor balance and trying to grip the floor that they can become tight and permanently curled. we are still working on core weak muscles too but we feel like shes doing amazing.
i hope everyone had a wonderful valentine's day! we sure did :) xoxo
Thinking about you guys! I can't imagine how difficult it is to know what the "right" thing to do is, but I know you and Tyson will make the right choice for Hazel (and yourselves).
ReplyDeleteFrom a speech standpoint as I'm sure other areas, Peds Doctors don't always tell parents the right things. (as you already know) At my school, I'm having doctors writing perscriptions for therapy because a kindergarten student can't say /r/. Hang in there girl. You guys will get everything figured out.
xoxo